Perinatal ComfortCare

Recommendations

Perinatal hospice: From womb to grave with love, article by Chuck Colson

Two and a Half Hours with Audrey, article by Pam Woody

National Hospice and Palliative Care Organization

Bhatia, J. “Palliative Care in the Fetus and Newborn.” Journal of Perinatology (Nature Publishing ), May 2006.

Calhoun BC. Perinatal hospice: Compassionate and comprehensive care for families with lethal prenatal diagnosis. The Linacre Quarterly 77(2) (May 2010): 147–156.

Carter, B.; Bhatia, J. “Comfort/Palliative Care Guidelines for Neonatal Practice: Development and Implementation in an Academic Medical Center,” Journal of Perinatology (Nature Publishing Group) 21 (2001): 279-283.

Chitty LS, Barnes CA, Berry C., Continuing with pregnancy after a diagnosis of lethal abnormality: Experience of Five Couples and recommendations for management. British Medical Journal 1996; 313:478-480.

D’Almedia, Hume, Lathrop, Njoku, Calhoun. “Perinatal Hospice: Family Centered Care of the Fetus with a Lethal Condition.” Journal of American Physicians and Surgeons (2006): 52-55.

Horning, MI and Braun, CA. “The lived experience of families who are told their child will die at or shortly after birth.” Journal of Undergraduate Nursing Scholarship, 8. no.1 (Fall, 2006)

Kersting, A. “Grief after termination of pregnancy due to fetal malformation.” Journal of Psychosomatic Obstetrics and Gynecology 25.2 (2004): 163-169.

Lawson, H.W. et al., “Abortion Mortality, United States, 1972 through 1987,” American Journal of Obstetrics and Gynecology 171 (1994): 365–372.

Lloyd J, Laurence KM, (1985), Sequelae and Support after Termination of Pregnancy for Fetal Malformations. Journal of British Medicine, 290, 907-909.

Maternal mortality — United States, 1982-1996. MMWR Morb Mortal Wkly Rep 1998; 47:705-707.

Moore, M. and Hopper, U. (1995), Do Birth Plans Empower Women? Evaluation of a Hospital Birth Plan. Birth, 22: 29–36.

Raymond S., Campbell, A.G.M. Duff, “Moral and Ethical Dilemmas in the Special-Care Nursery,” New England Journal of Medicine 289, no. 17 (1973): 890-894.

Reinhard, A, et al. Perinatal Hospice: An Important Option for Families Continuing Pregnancies with Lethal Fetal Abnormalties. Abstract. Cincinnati Children’s Hospital. Cinncinnati,OH, 2004.

Sumner LH, Kavanaugh K, Moro T. Extending palliative care into pregnancy and the immediate newborn period: state of the practice of perinatal palliative care. Journal Perinatal Neonatal Nursing. 2006 Jan-Mar;20(1):113-6.

Walker, Miller and Dalton. “The health-care experiences of families given the prenatal diagnosis of Trisomy 18.” Journal of Perinatology 28 (2008): 12-19.

Whitfield J.M., Siegel R.E., Glicken, A.D., The application of hospice concepts to neonatal care. American Journal of Diseases of Children. 1982; 136 (5): 421-424.

Zeanah C, Dailey J, Rosenblatt M, Saller D. “Do Women Grieve after Terminating Pregnancies because of Fetal Anomalies? A controlled investigation.” Obstetrics and Gynecology 82 (1993): 270-275.

 

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