Perinatal ComfortCare

Resources

Web Resources

Trisomy 18 Foundation:  Trisomy18.org

SOFT (Support Organization for Trisomy): Trisomy.org

Genetics Home Reference: ghr.nlm.nih.gov
An easy-to-read reference guide for understanding genetic conditions. Visit the website and type your baby’s specific diagnosis in the search engine.

Perinatal Hospice: perinatalhospice.org
A resource for families and health care professionals offering a list of hospitals and perinatal hospice providers.

Now I Lay Me Down to Sleep: NILMDTS.org
An organization of volunteer professional photographers who donate their time and talent to provide the gift of remembrance photography to parents experiencing a perinatal loss. Find a photographer in your area by visiting the website.

Book Resources

The Journey of a Lifetime: A Parents Guide to Planning and Celebrating a Baby’s Brief Life by Tammy Tate
A practical guide that provides clear and relevant information that focuses on the needs of both the parents and their baby. This resource empowers parents to make meaningful decisions that honor and validate the life of their precious baby. From creating birth plans to ideas for special keepsakes, this guide will be a valuable resource to help plan, celebrate and honor their baby’s lifetime.

Gift of a Lifetime by Tammy Tate
Published by Focus on the Family.
An informative guide for families and a practical resource for physician practices to assist families with a life-limiting prenatal diagnosis.
Order at family.christianbook.com or view pdf version here.

I Will Carry You by Angie Smith
A powerful and moving story of a one mother’s touching journey while carrying her daughter who had a prenatal diagnosis deemed “incompatible with life” and the eternal insights gained from a baby who lived only 3 hours.

The Gift of Time by Amy Kuelbebeck and Deborah L. Davis
A book of inspirational stories as told by parents who have carried a child with a life-limiting prenatal diagnosis.

 

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